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Buying your Self on the InternetWrap Contracts and Personal Genomics$
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Andelka M. Phillips

Print publication date: 2019

Print ISBN-13: 9781474422598

Published to Edinburgh Scholarship Online: May 2020

DOI: 10.3366/edinburgh/9781474422598.001.0001

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PRINTED FROM EDINBURGH SCHOLARSHIP ONLINE (www.edinburgh.universitypressscholarship.com). (c) Copyright Edinburgh University Press, 2022. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in ESO for personal use.date: 07 July 2022

Privacy, Data Protection and Security in the Context of Direct-to-Consumer Genetic Testing Services

Privacy, Data Protection and Security in the Context of Direct-to-Consumer Genetic Testing Services

Chapter:
(p.125) 4 Privacy, Data Protection and Security in the Context of Direct-to-Consumer Genetic Testing Services
Source:
Buying your Self on the Internet
Author(s):

Andelka M Phillips

Publisher:
Edinburgh University Press
DOI:10.3366/edinburgh/9781474422598.003.0004

This chapter provides a broad overview of privacy, data protection and security issues raised by DTC services. This includes discussion of the EU’s General Data Protection Regulation (GDPR), the UK’s Data Protection Legislation, and a brief discussion of US and Canadian Privacy Law. It also covers secondary use of genetic databases, the Future of Privacy Forum’s Privacy Best Practices for Consumer Genetic Testing Services, and Indigenous Peoples and Data Sovereignty.

Keywords:   GDPR, data protection, privacy policies, Data Protection Act 2018, Genetic Non-Discrimination Act 2017, GNA, data sovereignty, Golden State Killer, privacy notices, data security, Pribot, GEDmatch

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